Diagnosed with a rare and incurable condition, Nihal is estimated to be 4,000 times more likely to develop skin cancer than unaffected people. Despite this, she remains determined to live an active, fulfilling life. Photojournalist Paul-Louis Godier has been documenting her daily struggles

Nihal walks into the large building that is the HQ the French national television network. She pulls a small black monitor from her pocket and points it toward the large glass windows covering the broadcast office lobby.

The readout tells her the ultraviolet levels have dropped to zero, which means it is safe to lift off her helmet. Minutes later, she steps forward to tell her story before millions.